
Thank you to all those who came out to our 3rd Annual PANS/PANDAS Awareness Day at the Texas State Capitol. Many more were in attendance than represented in this picture. It was our largest year yet, with approx. 75 in attendance, including representation from nine legislative offices.
Kelley Siliven speaks about healing her son's lyme and co infections with LDI.
Trent Odom speaks of the impact of PANS/PANDAS on him and his family.
Jana Roso, CPNP speaks about the need to raise awareness, educate providers and hospitals, collaborate, and secure insurance coverage for PANS/PANDAS.
Sara Routh, a mother navigating her daughter’s PANS/PANDAS journey, opens up about the pain of being dismissed by her pediatrician and highlights why early awareness is critical to preventing prolonged and avoidable suffering.
Barry Smeltzer, a PANS/PANDAS provider in Texas, gives hope by explaining this medical condition can be treated and collaboration, awareness, and persistency is very important.
Ashley Berner, RN and PANS/PANDAS mom speaks about the challenges PANS/PANDAS families face within the education system in Texas.
Lizzie Martinez, MA, DHOM, CCH, gives an overview of homeopathy and how this 300-year-old energy medicine can bring healing and freedom.
Courtney Dillon, MS, LPC, addresses legislators and others about the trauma of PANS and PANDAS, and how families need additional support and practitioners need additional protection.
PANS mom Amy Urbanovsky tells of her daughter's onset and how her misdiagnosis would have yielded negative outcomes had she not continued to search for the proper diagnosis and finally proper treatment.
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